Sunday, October 4, 2009

Autism Awareness


Do any of you watch The Amazing Race? It's on tonight. It just started last Sunday. For the last couple of years they've had special needs people racing. One girl was a little person, last year there was a 20's something who is deaf. He was amazing. He made it all the way to the final three.

This year I was surprised and excited to hear that one of the racers has Aspergers. Aspergers Syndrome is what my son Michael has. It's on the Autism Spectrum of disorders. I had never heard of it before Michael was diagnosed. All I knew about was Autism - non verbal, rocking, head banging, violent at times. Asperger's Syndrome has been around for a very long time but no one knew it was there until the late 1980's. A man and his brother were shot and killed by police in San Francisco in the early 1920's because the police wanted to talk to them (they were innocent bystanders when an incident occurred) and they didn't understand what the police wanted so they tried to run away. No blame to the police officers of course. All they saw was 2 men trying to run away from the scene of an incident.

There have been one or two TV shows, series, where they've had actors playing the part of someone with Aspergers. But no, they didn't get it right. I'd comment that someone with Aspergers wouldn't do this or that or act this way or that way. To see an actual Aspergers individual showing the world who he is, what he can do is beyond awesome.

And this fellow is very brave to try this at all. He said he had difficulty with changes to his surroundings.. understatement. I don't believe anyone knows just how hard it is for them. I want to change from my summer red impatiens on the steps leading up to the front door to winter pansies. I got maroon coloured ones, closest I could get to red. But Michael keeps telling me the impatiens look fine, he likes the red ones. Something that small, when the time comes to change them, will bother him. He'll pace, he'll be anxious because they aren't the same plants. And change is too hard. So you can imagine what happens when we put a Christmas Tree in the livingroom and start decorating and putting things where they "don't belong."

Last week in the race they were in Vietnam. It was raining.. like monsoon weather. There must have been 3 feet of water on the roads and pouring rain. A young man got onto the bus that the racers were on. He wasn't wearing a coat and so the fellow with Aspergers gave him his coat. He said he looked like he needed it more than he did. That is the beautiful side of Aspergers. They are so giving and so compassionate. Socialization is a major hurdle for them and yet if they see someone they don't even know that they perceive is in need they will give them the shirt off their back.. literally.

Their challenge on this leg of the race was to "herd" ducks. The Vietnamese use them in the rice paddies to keep down algae, etc. that can ruin their crops. This one was a no brainer. If you have a room full of people and one of them is autistic and then you let in 3 dogs all 3 dogs will gravitate to the person with Autism. There is some connection with all animals. The fellow that is racing with him called him the Duck Whisperer.

I see Michael in the field out back with the horses.. there's about 20 of them. They all crowd around him. Maybe they think he is one of them I don't know. He went to his uncle's house where there were 5 cats. All 5 cats, including one who always hides if strangers are around, ended up vying for space on his lap.

Anway, this is my long round about way of saying that I hope lots of people are watching this show, watching this fellow, at least until he is disqualified by coming in last at a checkpoint. I want so badly for the world to understand my son.

8 comments:

Cheryl Willis said...

Beautifully written, I can tell you love your boy very much. Years ago I worked for a Development Center that did educational services for kids 0-5yrs old. We had one little boy who was Autistic who I really enjoyed teaching. So much so that when he move on to Kindergarten I left my job to go with him to be his aid. It was amazing the things he could learn to do.
I remember other teachers saying "he should be doing this or not doing that" and I thought NO this is exactly what he is suppose to be doing evidenced by the fact that he is doing it! We are not clones or cookie cutter beings. Even kids with learning disabilities are unique. Even though this kid couldn't speak he could read and comprehend a lot of things above his grad level. He views the world different than some, but it was a joy to have a small part in his life's journey. I know your son is Blessed to have you for a mom. Your love for him comes out very clear in your writings. I love how you take the time to share and in doing so help educate others to this disorder.
I don't normally watch that particular show but will tape an episode to view. Thanks for sharing. - cw

marlene@ByTheSeam said...

Yes I watch it and I was hoping those two would win. Certianly a bit more worthy of it in my opinion. Thanks for all the info there.

Piece by Piece said...

A wonderful blog, I know little about aspergers syndrome as I have never encountered anyone with this disorder, thanks for enlightening me. My girlfriend who lives in the UK, has a grandson who is autistic. Some of the stories she tells me about indicate that the family has to go through some trying times to get assistance, special schooling, etc., and other times telling of such a loving little boy.
I watch the Amazing Race too, the young man in the race is quite special. I am hoping that he will last a long time.
Your son is blessed to have you as his Mother. Thanks for sharing. Patricia

Auntie Em said...

Thanks for letting us know more about Asperger's. There was a contestent on "America's Next Top Model" a few seasons ago who had Asperger's. She was a fan favorite, and made it to the top 5 or 6. I hope your Amazing Racer goes far.

Lane said...

I'm always so proud that you speak so fluently about Asperger's. It shows a great strength in you that you deal with this and keep a sense of humor. Take care. lane

Angela said...

Shirley, I swear you should be a writer! You are so eloquent expressing the emotion and feelings behind your stories. I cannot imagine the struggles you have went thru, trying to get people to understand your son.

Molly said...

Shirley you are such a strong person. Naturally you love Michael no matter what, but I'm not so sure I could be polite to somebody be rude to my child or causing problems for him. I believe in my heart that you could. I don't think there is a bad bone in your body, you should give yourself a big hug for the good that you have done. Naturally, I know you. You will never stop educating people about Aspergers, and that is great. We are a world of the uneducated so we must be taught. Take care.

Vals Quilting said...

Hi Shirley, I was going to pass over this post as i was in a hurry to read through it before lunch but something made me stop and review it one more time...I'm sure glad I did as your story was so touching now I'm sitting here writing this review with tears - happy ones. Thanks for sharing your story it's so great that people like you take the time to share your intimate stories with perfect strangers like myself and leave a lasting impression. Thank so much!!
Have a great weekend
Valerie
http://www.pastimesonline.ca/vals-quilting/